Group member - Patient advisory group to diagnose bladder and kidney cancer earlier
Summary
Activity: Member of patient advisory group
Organised by: The University of Warwick
Location: Online, anywhere
Time commitment:
- 3 x 1.5-hour panel meetings to be held online (Jan, March and June – exact dates to be confirmed based on participant availability)
- Potential for last meeting to be hosted at the University of Warwick with attendance in-person (Sept), to be discussed further.
Payment and Expenses: Each 1.5-hour online meeting will be paid at £35 (total of £105 for all 3 meetings). If required, last In-person meeting paid at £80 for the day.
Looking for: People with a personal experience of bladder or kidney cancer (or other urological cancers).
Closing date: Friday 5 December
Opportunity Information
Cancer Research UK have commissioned a project with The University of Warwick to develop Target Product Profiles (TPPs). TPPs provide a blueprint researchers can use to take a promising new technology, which meets the needs of those who will be using them, from the bench to the bedside. The hope is that by using TPPs, more new tests will make it to patients and improve diagnosis and cancer care.
The project aims to develop a TPP for new bladder and kidney cancer tests to help diagnose cancer earlier, when more treatment options are available, leading to improved outcomes for patients. Researchers at The University of Warwick are creating a panel of people affected by cancer who’ll help shape decisions made by an expert advisory group for this project. The views of this panel will help ensure the research carefully considers the needs and experiences of patients. They’re currently in phase 3 of the programme which focusses on bladder and kidney cancer and so are looking for people affected by these cancers to join the group.
What you’ll get out of it:
- Contribute to a new and exciting area of research that could help more promising tests make it to patients.
- The opportunity to share your experiences to help shape the future research of new tests that meet the needs of patients.
In this role, you’ll:
- Attend 3 x 1.5-hour Patient Advisory Panel meetings (online – Jan, March & June tbc)
- Share your thoughts and feedback on the project information presented
- Bring your lived experience of being diagnosed with cancer and your thoughts around the acceptability of different tests.
- Provide your views on the draft TPP which will be informed by your previous feedback
- Potentially attend a consensus meeting, in-person at the University of Warwick (Sept, 2025)
Looking for people who:
- Are or have been affected by bladder or kidney cancer (or other urological cancers).
- Are comfortable and willing to share their experience and opinions
- Have good communication skills and the ability to share their thoughts
- Can access online meetings through a computer/tablet and a stable internet connection (Microphone and camera needed)
- Can commit to all the meetings
You do not need to have:
- Any prior knowledge of Cancer Research UK or the work being done
- An understanding of research or science
In this role, you will be supported by:
- Holding an introductory session to help you understand the aim of the project and the role you’ll play
- Sending key information which may be useful for you to read prior to the meetings
- Reasonable adjustments will be made, where needed, to facilitate participation (e.g., sending hard copy reading materials for meetings in the post rather than by email)
How to apply
To express your interest in this opportunity, please complete the short expression of interest form. They’re looking for a diverse range of people to fill these roles, so they’ll select a broad range of candidates to send the application form. Please complete and return your expression of interest by Friday 6 December. The first panel meeting is expected to take place towards end-January 2025, so they’ll be in touch promptly after the closing date.
If you have any questions, please contact Mary.Jordan@warwick.ac.uk