Salivary gland cancer resources and support organisations

Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. The charity organise regular networking meetings for those affected (in person or via zoom). The website includes information about treatment, how to cope and patient stories.

Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.

Phone: 0300 0120 275 (support and advice line)
Head office email: info@changingfaces.org.uk

The contact details for the skin camouflage service are:

Phone: 0300 0120 276
Email: skincam@changingfaces.org.uk

Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers. The website also has a forum and information on local support groups.

Tel: 01924 950 950 (Monday to Friday 9am - 5pm)

Email: info@mouthcancerfoundation.org

This UK charity has been set up by cancer specialists and people affected by head and neck cancer. They aim to raise awareness about head and neck cancer, provide information and advice, and act as a voice for people with head and neck cancer and their families. Their website also has stories from people with head and neck cancer. 

The Rare Cancer Support Forum has several message boards so people with less common or rarer cancers can get in touch with each other. Friends and families of people with rarer cancers can also use the message boards to share their experiences, give support or get advice from people in similar situations.

Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.

You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.

Phone: 0300 123 1801
Email: enquiries@maggies.org

Quit smoking is an NHS website dedicated to helping people stop smoking. The website has information on how to quit smoking, as well as information on the NHS Quit smoking app.

ASH is a portal for tobacco policies. It is a campaigning public health charity that is trying to stop the harm caused by tobacco.

 SPOHNC is an American organisation with a support network for people with head and neck cancers. They have a survivor to survivor network and some useful information, including clinical trials and products that may be helpful if you've had a head and neck cancer.

The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer. 

E Carper, K Hu and E Kuzin
Jones and Bartlett Learning, 2007
ISBN 978 0763743079

Provides doctors and patients views and answers questions about treatment and side effects, and quality of life after treatment. As it is American, not all the information will be relevant for patients in the UK.

Dr Terry Priestman
Sheldon Press, 2009
ISBN 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Dr Terry Priestman
Sheldon Press, 2009
ISBN 978-1847090485

This handbook deals frankly and sensitively with the issues of cure, follow up, treatment side effects and recurrence. It looks at the support available to people who have finished their treatment.