Follow up for glucagonoma

You have follow up appointments to check how you are and see if you have any problems or worries following treatment for a glucagonoma. The appointments also give you the chance to raise any concerns you have about your progress.

How often you have follow up

How often you see the doctor depends on the type of treatment you had, the side effects and whether the tumour has spread to other parts of the body.

You usually see your doctor or specialist nurse every 3 to 6 months after treatment for glucagonoma that had spread to other parts of the body. You see them less often if you had surgery and there are no signs of the glucagonoma coming back.

What happens

Your doctor or nurse may examine you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects, and if you are worried about anything. 

You might also have tests at some visits. The tests may include:

  • blood tests
  • CT scan
  • radioactive scan (octreotide or gallium PET scan)

Between appointments

Contact your doctor or specialist nurse if you have any concerns between appointments. You should also contact them if you notice any new symptoms. You don’t have to wait until your next visit.

Many people find their check ups quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.

It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling during or after cancer treatment.

You can also find people to share experiences with by using our online forum, CancerChat.

Cancer Research UK information nurses

For support and information, you can call the Cancer Research UK information nurses. They can give advice about who can help you and what kind of support is available. Freephone: 0808 800 4040 - Monday to Friday, 9am to 5pm. <Vipin Test>

  • Functioning and nonfunctioning pNENs
    K Daskalakis 
    Current Opinion in Endocrine and Metabolic Research, 2021. Vol 18, June 2021, Pages 284-290

  • Rare functioning pancreatic endocrine tumors
    D O’Toole and others
    Neuroendocrinology, 2006. Vol 84, Pages 189-195

  • ENETS consensus guidelines for the management of patients with digestive neuroendocrine neoplasms: functional pancreatic endocrine tumor syndromes
    R T Jensen and others
    Neuroendocrinology, 2012. Vol 95, Pages 98-119

  • Neuroendocrine Tumours: Diagnosis and Management
    S Yalcin and K Oberg
    Springer, 2015

Last reviewed: 
10 Aug 2021
Next review due: 
10 Aug 2024

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